Table 4. Overview available samples and measurements per outcome per time point caregivers (n=262). Click here for a pdf.


Biobank
 

 

Subject

 

T0

M3

M6

NQ_x002

 Biobank

 Oral rinse

234

NA

NA

 

 

 Blood

229

NA

NA

 

 

 

 

 

 


Patient reported outcome measures
 

 

 Subject

 Instrument

T0

M3

M6

 

 Measured once:

 

227

NA

NA

NQ_x101

 Demographics

 Age and gender

 

 

 

NQ_x103

 Education and literacy

 Education and literacy

 

 

 

NQ_x104

 Country of birth and family

 Country of birth and family

 

 

 

NQ_x105

 Diseases

 Self-administered Comorbidity Questionnaire (SCQ)

 

 

 

NQ_x112

 Personality (big five)

 NEO Five Factor Inventory (NEO-FFI)

 

 

 

NQ_x113

 Locus of control 

 Pearlin Schooler and Mastery Scale (PSMS)

 

 

 

NQ_x115

 Coping

 Utrecht Coping List (UCL)

 

 

 

NQ_x116

 Social Desirability

 Social desirability questionnaire (study-specific   questionnaire)

 

 

 

NQ_x127

 Fertility

 Study-specific questionnaire (women only)

 

 

 

 

 

 

 

 

 

 

 Measured every time point:

 

 

 

 

 

 Questionnaire A

 

227

 194

 170

NQ_x102

 Weight

 Gender, age, self-reported weight

 

 

 

NQ_x106

 Smoking and nicotine dependence

 Smoking habits (study-specific questionnaire)

 

 

 

NQ_x107

 Alcohol intake and dependence

 Alcohol (study-specific questionnaire)

 

 

 

NQ_x108

 Drugs use

 Drugs (study-specific questionnaire)

 

 

 

NQ_x109

 Generic quality of life

 EuroQol (EQ-5D + VAS)

 

 

 

NQ_x110

 Disease-specific quality of life

 EORTC QLQ-C30

 

 

 

NQ_x117

 Severity anxiety/depression

 Hospital Anxiety and Depression Scale (HADS)1

 

 

 

NQ_x118

 Fatigue

 Multidimensional Fatigue Inventory (MFI)

 

 

 

NQ_x128

 Social support

 Social Support List – Interactions (SSL-I12)

 

 

 

NQ_x129

 Concerns about patient

 Caregiver Reaction Assessment (CRA)

 

 

 

NQ_x130

 Physical activity

 Physical Activity Scale for the Elderly (PASE)

 

 

 

 

 

 

 

 

 

 

 Questionnaire B

 

  227

194

 170

NQ_x202

 Participation

 Impact on Participation and Autonomy (IPA)

 

 

 

NQ_x203

 Self-perceived neurocognitive function

 Cognitive Failures Questionnaire (CFQ)

 

 

 

NQ_x204

 Self-efficacy

 Generalized Self-Efficacy Scale (GSE)

 

 

 

NQ_x205

 Sleep quality

 Pittsburgh Sleep Quality Index (PSQI)

 

 

 

NQ_x206

 Life events

 Brugha/List of Threatening Experiences

 

 

 

NQ_x209

 Hearing

 Caron

 

 

 

NQ_x210

 Sexual functioning – men

 International Index of Erectile Function (IIEF)

 

 

 

NQ_x211

 Sexual functioning – women

 Female Sexual Function Index (FSFI)

 

 

 

NQ_x213

 Supportive care needs

Supportive Care Needs Survey Partners and Caregivers (SCNS-P&C) cancer module (SCNS-HNC)

 

 

 

NQ_x214

 Leisure activities

Study-specific questionnaire

 

 

 

 

Kubus

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