Table 4. Overview available samples and measurements caregivers
 

 Biobank

 

 Subject

 

 

Biobank

Oral rinse

 

Blood

 Patient-reported outcome measures

 

 Subject

 Instrument

 

Measured once:

 

NQ_x101n

Demographics

Age and gender

NQ_x103n

Education and literacy

Education and literacy

NQ_x104n

Country of birth and family

Country of birth and family

NQ_x105n

Diseases

Self-administered Comorbidity Questionnaire (SCQ)

NQ_x112n

Personality (big five)

NEO Five Factor Inventory (NEO-FFI)

NQ_x113n

Locus of control

Pearlin Schooler and Mastery Scale (PSMS)

NQ_x115n

Coping

Utrecht Coping List (UCL)

NQ_x116n

Social Desirability

Social desirability questionnaire (study-specific questionnaire)

NQ_x127n

Fertility

Study-specific questionnaire (women only)

 

 

 

 

Measured every time point:

 

 

Questionnaire A

 

NQ_x102n

Weight

Self-reported weight

NQ_x106n

Smoking and nicotine dependence

Smoking habits (study-specific questionnaire)

NQ_x107n

Alcohol intake and dependence

Alcohol (study-specific questionnaire)

NQ_x108n

Drugs use

Drugs (study-specific questionnaire)

NQ_x109n

Generic quality of life

EuroQol (EQ-5D + VAS)

NQ_x110n

Disease-specific quality of life

EORTC QLQ-C30

NQ_x117n

Severity anxiety/depression

Hospital Anxiety and Depression Scale (HADS)

NQ_x118n

Fatigue

Multidimensional Fatigue Inventory (MFI)

NQ_x128n

Social support

Social Support List – Interactions (SSL-I12)

NQ_x129n

Concerns about patient

Caregiver Reaction Assessment (CRA)

NQ_x130n

Physical activity

Physical Activity Scale for the Elderly (PASE)

 

 

 

 

Questionnaire B

 

NQ_x202n

Participation

Impact on Participation and Autonomy (IPA)

NQ_x203n

Self-perceived neurocognitive function

Cognitive Failures Questionnaire (CFQ)

NQ_x204n

Self-efficacy

Generalized Self-Efficacy Scale (GSE)

NQ_x205n

Sleep quality

Pittsburgh Sleep Quality Index (PSQI)

NQ_x206n

Life events

Brugha/List of Threatening Experiences

NQ_x208n

Loneliness

Loneliness Scale (de Jong Gierveld)

NQ_x209n

Hearing

Caron

NQ_x210n

Sexual functioning – men

International Index of Erectile Function (IIEF)

NQ_x211n

Sexual functioning – women

 Female Sexual Function Index (FSFI)

NQ_x213n

Supportive care needs

Supportive Care Needs Survey Partners and Caregivers (SCNS-P&C) cancer module (SCNS-HNC)

NQ_x214n

Leisure activities

 Study-specific questionnaire

 

 

Kubus

Project Kubus
VUmc, Afdeling KNO
Postbus 7057
1007 MB Amsterdam
info.netqubic@vumc.nl